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  1. EU has become stricter: Researcher wrote eight pages on ethics – waited six months for the money

    involves ethnographic field studies. "I got questions about the consent form, about what to do when interviewing children, if I were ... carefully the methods of the project and how to protect our informants," says the researcher. Stricter since 2018 A few weeks later

    /News/News archive/2019/EU has become stricter: Researcher wrote eight pages on ethics – waited six months for the money/

  2. "Don’t let transparency damage science"

    is collected from. "You have a way of codifying biological information in repository databases that you can then use in data models ... collected for specified, explicit and legitimate purposes, and a consent for use must also be specific. • Data minimization: the collection

    /News/News archive/2018/"Don’t let transparency damage science"/

  3. Human biological material, full genome sequencing and the right of reservation

    left, Per was informed that the biological material he had provided could be used in research without his consent on approval by ... not want the blood sample to be used in research without his consent. Three years later Doctor Lise suspects that the heart attack

    /The Research Ethics Library/Resources/Case studies/Human biological material, full genome sequencing and the right of reservation/

  4. Vulnerable groups

    Vulnerable groups [The following text is an example or case, which can serve as a basis for reflection and discussion. Some examples may be based on real ... portrayal she reacts to? Should the researcher have obtained informed consent from the author?

    /The Research Ethics Library/Resources/Case studies/Vulnerable groups/

  5. Experiences of violence among children in the care of the Norwegian Child Welfare Service

    contend that the results will provide extremely important information, which can help to improve children's living situation in ... of individual institutions. The children will receive an information letter describing in simple terms what the study will be

    /The Research Ethics Library/Resources/Case studies/Experiences of violence among children in the care of the Norwegian Child Welfare Service/

  6. Informed consent

    Informed consent [The following text is an example or case, which can serve as a basis for reflection and discussion. Some examples ... Prior to the interviews, the researcher will obtain consent from the informants or their parents/guardians. What follow-up routines

    /The Research Ethics Library/Resources/Case studies/Informed consent/

  7. What is the extent of the researcher’s responsibility?

    Oslo area and was based on the narratives of two groups of informants. One group comprised health care personnel who had been in ... experiences of the latter group. It was difficult to find informants among the immigrants. However, the Centre for Migration and

    /The Research Ethics Library/Resources/Case studies/What is the extent of the researcher’s responsibility?/

  8. C) Respect for groups and institutions

    companies, interest organisations etc. may have for not wanting information about themselves, their members or their plans to be published ... obligation to provide information except where specific statutory provisions apply to certain types of information. Such institutions

    /Ethical guidelines for research/Guidelines for Research Ethics in the Social Sciences, Humanities, Law and Theology/C) Respect for groups and institutions/

  9. B) Respect for individuals

    by the research. 7 Duty to inform Researchers must provide participants with adequate information about the field of research ... who has funded the project, who will receive access to the information, the intended use of the results, and the consequences of

    /Ethical guidelines for research/Guidelines for Research Ethics in the Social Sciences, Humanities, Law and Theology/B) Respect for individuals/

  10. Introduction

    is to provide researchers and the research community with information about recognised norms of research ethics. The guidelines ... tasks, for example systematic acquisition and processing of information about persons, groups or organisations in order to develop

    /Ethical guidelines for research/Guidelines for Research Ethics in the Social Sciences, Humanities, Law and Theology/Introduction/

  11. "Extremism is a research ethics minefield"

    age of confusion, fear and frustration. Politicians want information that helps them make the right decisions. The population ... Gule asked himself whether interviews could actually yield information that was so valuable that it made up for the potential burdens

    /News/News archive/2016/"Extremism is a research ethics minefield"/

  12. Protection of research subjects

    Researchers must respect the requirement of freely given, informed consent When research involves humans as research subjects, researchers ... rule, obtain freely given, informed consent. General requirements regarding freely given, informed consent entail researchers ensuring

    /Ethical guidelines for research/Guidelines for research ethics in science and technology/Protection of research subjects/

  13. Summary

    Summary Research ethics The concept of "research ethics" refers to a broad set of standards, values, ... Researchers must respect the requirement of freely given, informed consent. 11 Researchers must protect the privacy of their research

    /Ethical guidelines for research/Guidelines for research ethics in science and technology/Summary/

  14. The Health Research Act

    medical and health research" Ethics and the law Participant consent "Ethically sound medical and health research" The purpose of ... professions. Participant consent The principal rule applying to participation in medical and health research is "informed, voluntary, express

    /The Research Ethics Library/Practical information/Legal statutes and guidelines/The Health Research Act/

  15. Dunn & Gordon (2005)

    Dunn LB, Gordon NE. “Improving informed consent and enhancing recruitment for research by understanding economic behaviour”. JAMA

    /The Research Ethics Library/Resources/Dunn & Gordon (2005)/

  16. Declaration of Helsinki

    self-determination, privacy, and confidentiality of personal information of research subjects. The responsibility for the protection ... never with the research subjects, even though they have given consent. 10. Physicians must consider the ethical, legal and regulatory

    /The Research Ethics Library/Practical information/Legal statutes and guidelines/Declaration of Helsinki/

  17. Payment of research subjects

    participating in a project that can benefit their health, despite information to the contrary (Dickert and Grady 1999, NIH 2009). Payment ... been that payment can serve as 'undue influence' during the information process or result in an 'obligation to deliver'. This can

    /The Research Ethics Library/Topics/Data protection and responsibility concerning the individual/Payment of research subjects/

  18. Children

    key to the ethical assessments. Introduction Consent and competence to grant consent Weighing of benefit and harm associated with ... credible knowledge, in addition to having important and unique information to provide about their lives. This knowledge provides a different

    /The Research Ethics Library/Topics/Research on particular groups/Children/

  19. Forms of visual expression

    they consented to be photographed and their image perhaps to be reproduced in other media? Was the consent informed consent, have ... placed in new contexts, and even if a research subject has consented to the images being used, the context may be directly offensive

    /The Research Ethics Library/Topics/Particular problem areas/Forms of visual expression/

  20. Ethnic groups

    mind that ethnic identity is considered sensitive personal information, which is subject to special processing rules (cf. ss. 2 ... Act). It is generally more demanding to process sensitive information when dealing with small populations, and it is important

    /The Research Ethics Library/Topics/Research on particular groups/Ethnic groups/

  21. Intellectual impairment

    Introductory figures Voluntary informed consent The voluntary aspect Informedness Consent Anonymization Method-specific ethical ... considerably lower than the actual prevalence. Voluntary informed consent One of the conditions for including someone in a research

    /The Research Ethics Library/Topics/Research on particular groups/Intellectual impairment/

  22. Human biological material

    disposition to a particular disease, and if such sensitive information is not handled properly and in accordance with the rules ... applies even if the person from whom the material stems gives consent to its release, the intention being to prevent persons in vulnerable

    /The Research Ethics Library/Topics/Research on human biological material/Human biological material/

  23. Biometrics

    be used in a wide range of areas: in the health service, information systems, the transport sector and the workplace, for logging ... challenges in research Digitisation incorporates the body in the information network: individuality and subjectivity become digital objects

    /The Research Ethics Library/Topics/The research/societal relationship/Biometrics/

  24. Persons with limited life expectancy

    Burden on the participants Risk versus benefit Capacity to consent Confidentiality and anonymity Pragmatic definition For pragmatic ... patients in Norway who have a limited life expectancy have been informed that the disease is no longer curable, but we have no empirical

    /The Research Ethics Library/Topics/Research on particular groups/Persons with limited life expectancy/

  25. Prisoners

    research lies in the possibilities for obtaining freely given informed consent to participate from people whose freedom is restricted ... subject to more stringent requirements in order to ensure that consent is voluntary since there may be uncertainty about whether the

    /The Research Ethics Library/Topics/Research on particular groups/Prisoners/