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  1. "Don’t let transparency damage science"

    is collected from. "You have a way of codifying biological information in repository databases that you can then use in data models ... collected for specified, explicit and legitimate purposes, and a consent for use must also be specific. • Data minimization: the collection

    /News/News archive/2018/"Don’t let transparency damage science"/

  2. "Extremism is a research ethics minefield"

    age of confusion, fear and frustration. Politicians want information that helps them make the right decisions. The population ... Gule asked himself whether interviews could actually yield information that was so valuable that it made up for the potential burdens

    /News/News archive/2016/"Extremism is a research ethics minefield"/

  3. ”More than just bones?” Minutes from the Open Seminar

    research on human remains have been developed in recent years. He informed about Guidance for the Care of Human Remains in Museums (2005) ... remains, several issues are raised, such as, to what extent consent from the descendant should be obtained, and who to include

    /News/News archive/”More than just bones?” Minutes from the Open Seminar/

  4. 1. Public or private?

    open forums freely without obtaining consent from the parties covered by the information (point 8). This must always be balanced ... between the private and the public arenas in relation to information about behaviour that is disseminated and stored on the Internet

    /Ethical guidelines for research/Ethical Guidelines for Internet Research/1. Public or private?/

  5. 2. Free and informed consent

    2. Free and informed consent According to the NESH's Guidelines, research projects that include persons must generally only ... only be initiated after securing the subjects' free and informed consent (point 9). In other words, researchers must weigh relevant

    /Ethical guidelines for research/Ethical Guidelines for Internet Research/2. Free and informed consent/

  6. 3. Children's right to protection

    Children's right to protection Children and youths are valuable informants, and are entitled to be heard, also in the context of research ... does nothing to diminish the requirement to obtain parental consent for children's participation in research, even though this

    /Ethical guidelines for research/Ethical Guidelines for Internet Research/3. Children's right to protection/

  7. 4. Personal data, confidentiality and anonymity

    NESH's Guidelines stipulate that researchers must treat all information about private matters confidentially. The material must usually ... that the information is protected. In such situations, people may be willing to volunteer personal and sensitive information in an

    /Ethical guidelines for research/Ethical Guidelines for Internet Research/4. Personal data, confidentiality and anonymity/

  8. About NEM

    About NEM The Committee has 12 members with different professional backgrounds. Traditionally, the committee has been ... 2005: guidelines for research on persons with impaired informed consent capacity 2004: report on the ethical aspects of population

    /Our work/About us/The National Committee for Medical and Health Research Ethics (NEM)/About NEM/

  9. About NESH

    evaluate include how best to ensure that consent is freely given and whether children can consent by themselves to take part in research ... sources,the researchers’ duty of confidentiality and the duty to inform about planned criminal acts. In addition to giving advice in

    /Our work/About us/The National Committee for Research Ethics in the Social Sciences and the Humanities (NESH)/About NESH/

  10. B) Respect for individuals

    by the research. 7 Duty to inform Researchers must provide participants with adequate information about the field of research ... who has funded the project, who will receive access to the information, the intended use of the results, and the consequences of

    /Ethical guidelines for research/Guidelines for Research Ethics in the Social Sciences, Humanities, Law and Theology/B) Respect for individuals/

  11. Bias

    studies (observational studies) that are based on the patients' consent to access to their medical records (Kho ME et al. 2009), a ... common research ethics requirement for use of confidential information collected by the health services. Kho et al. argue that researchers

    /The Research Ethics Library/Topics/Particular problem areas/Bias/

  12. Biography

    How far should the biographer accommodate the requirement of consent from the subject of the biography or their next of kin? An ... purpose served by including private life or compromising information. Will focusing on these themes give a wider picture and increased

    /The Research Ethics Library/Introduction/Methods and approaches/Biography/

  13. Biometrics

    be used in a wide range of areas: in the health service, information systems, the transport sector and the workplace, for logging ... challenges in research Digitisation incorporates the body in the information network: individuality and subjectivity become digital objects

    /The Research Ethics Library/Topics/The research/societal relationship/Biometrics/

  14. Biotechnology and gene technology

    should be made with regard to the scope and content of informed consent in connection with xenotransplantation (particularly since ... withdraw from infection monitoring?) The requirement of informed consent, which is fundamental with respect to medical interventions

    /The Research Ethics Library/Topics/Research and environment/Biotechnology and gene technology/

  15. C) Respect for groups and institutions

    companies, interest organisations etc. may have for not wanting information about themselves, their members or their plans to be published ... obligation to provide information except where specific statutory provisions apply to certain types of information. Such institutions

    /Ethical guidelines for research/Guidelines for Research Ethics in the Social Sciences, Humanities, Law and Theology/C) Respect for groups and institutions/

  16. Children

    key to the ethical assessments. Introduction Consent and competence to grant consent Weighing of benefit and harm associated with ... credible knowledge, in addition to having important and unique information to provide about their lives. This knowledge provides a different

    /The Research Ethics Library/Topics/Research on particular groups/Children/

  17. Clinical trials

    the participants include patients with a reduced capacity to consent. Funding of clinical trials The pharmaceutical industry is ... are properly conducted, it is a requirement that the patients consent to both the pharmaceutical firm and the regulatory authorities

    /The Research Ethics Library/Introduction/Methods and approaches/Clinical trials/

  18. Confidentiality

    Confidentiality Confidentiality means that information is restricted to those authorised to have access to it. Access restriction ... normally increases with the degree of sensitivity of the information, and with the degree of vulnerability of the research subject

    /The Research Ethics Library/Topics/Data protection and responsibility concerning the individual/Confidentiality/

  19. Consent

    Consent Freely given informed consent is regarded as one of the most central requirements for research on humans where the research ... express permission. The requirement that the consent be freely given and informed means that the subjects must not be under any

    /The Research Ethics Library/Topics/Data protection and responsibility concerning the individual/Consent/

  20. Deception research

    Deception in research entails that participants are not fully informed of the purpose of the study. Valuable insight can also be obtained ... participation in studies where those taking part are not informed of what the researchers are actually studying may have serious

    /The Research Ethics Library/Introduction/Methods and approaches/Deception research/

  21. Declaration of Helsinki

    self-determination, privacy, and confidentiality of personal information of research subjects. The responsibility for the protection ... never with the research subjects, even though they have given consent. 10. Physicians must consider the ethical, legal and regulatory

    /Ethical guidelines for research/Medical and health research/Declaration of Helsinki/

  22. Declaration of Helsinki

    self-determination, privacy, and confidentiality of personal information of research subjects. The responsibility for the protection ... never with the research subjects, even though they have given consent. 10. Physicians must consider the ethical, legal and regulatory

    /The Research Ethics Library/Practical information/Legal statutes and guidelines/Declaration of Helsinki/

  23. Dunn & Gordon (2005)

    Dunn LB, Gordon NE. “Improving informed consent and enhancing recruitment for research by understanding economic behaviour”. JAMA

    /The Research Ethics Library/Resources/Dunn & Gordon (2005)/

  24. Duty of secrecy

    two different contexts. First, these issues will arise when information has to be obtained from sources that are themselves subject ... about researchers' duty to preserve secrecy about certain information received from research subjects. It is largely the problems

    /The Research Ethics Library/Topics/Data protection and responsibility concerning the individual/Duty of secrecy/

  25. Ethnic groups

    mind that ethnic identity is considered sensitive personal information, which is subject to special processing rules (cf. ss. 2 ... Act). It is generally more demanding to process sensitive information when dealing with small populations, and it is important

    /The Research Ethics Library/Topics/Research on particular groups/Ethnic groups/