Jump to content

Menu

Did you mean: barn
  1. Informed consent

    Informed consent [The following text is an example or case, which can serve as a basis for reflection and discussion. Some examples ... Prior to the interviews, the researcher will obtain consent from the informants or their parents/guardians. What follow-up routines

    /The Research Ethics Library/Resources/Case studies/Informed consent/

  2. 2. Free and informed consent

    2. Free and informed consent According to the NESH's Guidelines, research projects that include persons must generally only ... only be initiated after securing the subjects' free and informed consent (point 9). In other words, researchers must weigh relevant

    /Ethical guidelines for research/Ethical Guidelines for Internet Research/2. Free and informed consent/

  3. Dunn & Gordon (2005)

    Dunn LB, Gordon NE. “Improving informed consent and enhancing recruitment for research by understanding economic behaviour”. JAMA

    /The Research Ethics Library/Resources/Dunn & Gordon (2005)/

  4. Storosum et al (2002)

    Storosum et al (2002) Storosum, J., van Zwieten, B. & de Haan, L. (2002). Informed consent from behaviourally ... (2002) Storosum, J., van Zwieten, B. & de Haan, L. (2002). Informed consent from behaviourally disturbed patients. The Lancet 359(9300)

    /The Research Ethics Library/Resources/Storosum et al (2002)/

  5. Kho, ME, et al (2009)

    Kho ME; Duffett M, Willision DJ, Brouwers MC. Written informed consent and selection bias in observational studies using medical

    /The Research Ethics Library/Resources/Kho, ME, et al (2009)/

  6. Faden et al (1996)

    Faden et al (1996) Faden, R.R., T.L. Beuchamp & N.M.P. King (1986). A history and theory of informed consent. New York: Oxford University ... Beuchamp & N.M.P. King (1986). A history and theory of informed consent. New York: Oxford University Press

    /The Research Ethics Library/Resources/Faden et al (1996)/

  7. Consent

    Consent Freely given informed consent is regarded as one of the most central requirements for research on humans where the research ... express permission. The requirement that the consent be freely given and informed means that the subjects must not be under any

    /The Research Ethics Library/Topics/Data protection and responsibility concerning the individual/Consent/

  8. Declaration of Helsinki

    self-determination, privacy, and confidentiality of personal information of research subjects. The responsibility for the protection ... never with the research subjects, even though they have given consent. 10. Physicians must consider the ethical, legal and regulatory

    /Ethical guidelines for research/Medical and health research/Declaration of Helsinki/

  9. Declaration of Helsinki

    self-determination, privacy, and confidentiality of personal information of research subjects. The responsibility for the protection ... never with the research subjects, even though they have given consent. 10. Physicians must consider the ethical, legal and regulatory

    /The Research Ethics Library/Practical information/Legal statutes and guidelines/Declaration of Helsinki/

  10. 3. Children's right to protection

    Children's right to protection Children and youths are valuable informants, and are entitled to be heard, also in the context of research ... does nothing to diminish the requirement to obtain parental consent for children's participation in research, even though this

    /Ethical guidelines for research/Ethical Guidelines for Internet Research/3. Children's right to protection/

  11. Protection of research subjects

    Researchers must respect the requirement of freely given, informed consent When research involves humans as research subjects, researchers ... rule, obtain freely given, informed consent. General requirements regarding freely given, informed consent entail researchers ensuring

    /Ethical guidelines for research/Guidelines for research ethics in science and technology/Protection of research subjects/

  12. 4. Personal data, confidentiality and anonymity

    NESH's Guidelines stipulate that researchers must treat all information about private matters confidentially. The material must usually ... that the information is protected. In such situations, people may be willing to volunteer personal and sensitive information in an

    /Ethical guidelines for research/Ethical Guidelines for Internet Research/4. Personal data, confidentiality and anonymity/

  13. Intellectual impairment

    Introductory figures Voluntary informed consent The voluntary aspect Informedness Consent Anonymization Method-specific ethical ... considerably lower than the actual prevalence. Voluntary informed consent One of the conditions for including someone in a research

    /The Research Ethics Library/Topics/Research on particular groups/Intellectual impairment/

  14. Deception research

    Deception in research entails that participants are not fully informed of the purpose of the study. Valuable insight can also be obtained ... participation in studies where those taking part are not informed of what the researchers are actually studying may have serious

    /The Research Ethics Library/Introduction/Methods and approaches/Deception research/

  15. Guidelines drawn up by The Norwegian National Research Ethics Committee for medical and health research (NEM)

    Guidelines drawn up by The Norwegian National Research Ethics Committee for medical and health research (NEM) The ... Norwegian Guidelines for research on persons with impaired informed consent capacity (2005) - - In Norwegian Guidelines for ethical

    /Ethical guidelines for research/Medical and health research/Guidelines drawn up by The Norwegian National Research Ethics Committee for medical and health research (NEM)/

  16. Protection of privacy

    Protection of privacy Information about persons who take part in research projects shall have an "adequate level of protection" ... of the data Fundamental principles Personal data and consent Information security The nature of the data The need for protection

    /The Research Ethics Library/Topics/Data protection and responsibility concerning the individual/Protection of privacy/

  17. B) Respect for individuals

    by the research. 7 Duty to inform Researchers must provide participants with adequate information about the field of research ... who has funded the project, who will receive access to the information, the intended use of the results, and the consequences of

    /Ethical guidelines for research/Guidelines for Research Ethics in the Social Sciences, Humanities, Law and Theology/B) Respect for individuals/

  18. Questionnaire surveys

    individual anonymity Group-related indiscretion Informed consent Burden on informants – alternative data sources Requirement for relevance ... questions should be formulated to provide the most valid information possible about the facts at issue, and how the responses

    /The Research Ethics Library/Introduction/Methods and approaches/Questionnaire surveys/

  19. The Social Sciences, the Humanities, Law and Theology

    extends also to individuals about whom the researcher gains information, or who are affected by the research in other indirect ways ... into objections particularly on the grounds of a lack of informed consent on the part of the parents, uncertainty about the purpose

    /The Research Ethics Library/Introduction/An introduction to research ethics/The Social Sciences, the Humanities, Law and Theology/

  20. Responsibility concerning the individual

    researcher and the research subject How voluntary and how informed? Anonymisation as protection or invalidation? The researcher's ... expressed in how voluntary informed consent is administered. This concerns such issues as who gives consent, how it is given, whether

    /The Research Ethics Library/Topics/Data protection and responsibility concerning the individual/Responsibility concerning the individual/

  21. Human biological material, full genome sequencing and the right of reservation

    left, Per was informed that the biological material he had provided could be used in research without his consent on approval by ... not want the blood sample to be used in research without his consent. Three years later Doctor Lise suspects that the heart attack

    /The Research Ethics Library/Resources/Case studies/Human biological material, full genome sequencing and the right of reservation/

  22. Prisoners

    research lies in the possibilities for obtaining freely given informed consent to participate from people whose freedom is restricted ... subject to more stringent requirements in order to ensure that consent is voluntary since there may be uncertainty about whether the

    /The Research Ethics Library/Topics/Research on particular groups/Prisoners/

  23. General guidelines for research ethics

    PRINCIPLES Respect. People who participate in research, as informants or otherwise, shall be treated with respect. Good consequences ... material. 4. Voluntary informed consent Consent is the main rule in research on individuals or on information and material that can

    /Ethical guidelines for research/General guidelines for research ethics/

  24. The Nagoya Protocol

    access to such resources. This means, among others, that informed consent or approval and involvement must be procured from the indigenous ... communities within the territory of a party is accessed with the informed consent or approval and involvement of these indigenous and local

    /The Research Ethics Library/Practical information/Legal statutes and guidelines/The Nagoya Protocol/

  25. Internet users and Internet research

    may concern activities such as the publishing or sharing of information, social interactions or conflicts, genre or product development ... harming anyone and observe the requirements of freely given informed consent and of confidentiality where relevant. At the same time

    /The Research Ethics Library/Topics/Research on particular groups/Internet users and Internet research/

  26. Vulnerable groups

    Vulnerable groups [The following text is an example or case, which can serve as a basis for reflection and discussion. Some examples may be based on real ... portrayal she reacts to? Should the researcher have obtained informed consent from the author?

    /The Research Ethics Library/Resources/Case studies/Vulnerable groups/

  27. Feeding back the findings

    significant and altruistic contributions. The projects will obtain information that may be of interest and importance to these participants ... made clear to them, before they gave their prior consent, that they will be informed of the findings. The examples below are taken

    /The Research Ethics Library/Topics/The research/societal relationship/Feeding back the findings/

  28. Children

    key to the ethical assessments. Introduction Consent and competence to grant consent Weighing of benefit and harm associated with ... credible knowledge, in addition to having important and unique information to provide about their lives. This knowledge provides a different

    /The Research Ethics Library/Topics/Research on particular groups/Children/

  29. Confidentiality

    Confidentiality Confidentiality means that information is restricted to those authorised to have access to it. Access restriction ... normally increases with the degree of sensitivity of the information, and with the degree of vulnerability of the research subject

    /The Research Ethics Library/Topics/Data protection and responsibility concerning the individual/Confidentiality/

  30. 1. Public or private?

    open forums freely without obtaining consent from the parties covered by the information (point 8). This must always be balanced ... between the private and the public arenas in relation to information about behaviour that is disseminated and stored on the Internet

    /Ethical guidelines for research/Ethical Guidelines for Internet Research/1. Public or private?/

  31. The Health Research Act

    medical and health research" Ethics and the law Participant consent "Ethically sound medical and health research" The purpose of ... professions. Participant consent The principal rule applying to participation in medical and health research is "informed, voluntary, express

    /The Research Ethics Library/Practical information/Legal statutes and guidelines/The Health Research Act/

  32. The Oviedo Convention

    focuses on consent, both ordinary informed consent and consent when the person does not have the capacity to consent. Chapter 3 ... 3 deals with privacy and the right to information. Themes related to the human genome can be found in chapter 4. Research is specifically

    /The Research Ethics Library/Practical information/Legal statutes and guidelines/The Oviedo Convention/

  33. Persons with mental disorders

    researcher's capacity for self-reflexivity is crucial. Informed consent Patients' vulnerability does not necessarily mean that ... they have impaired competence or that they lack competence to consent. An acute crisis, for example with the development of psychosis

    /The Research Ethics Library/Topics/Research on particular groups/Persons with mental disorders/

  34. Duty of secrecy

    two different contexts. First, these issues will arise when information has to be obtained from sources that are themselves subject ... about researchers' duty to preserve secrecy about certain information received from research subjects. It is largely the problems

    /The Research Ethics Library/Topics/Data protection and responsibility concerning the individual/Duty of secrecy/

  35. Human biological material

    disposition to a particular disease, and if such sensitive information is not handled properly and in accordance with the rules ... applies even if the person from whom the material stems gives consent to its release, the intention being to prevent persons in vulnerable

    /The Research Ethics Library/Topics/Research on human biological material/Human biological material/

  36. Qualitative methods

    to certain ethical principles, such as confidentiality, informed consent and safeguarding the research subjects' integrity. (See ... to treat sensitive information with discretion. In surveys that deal with sensitive issues, written consent is often required.

    /The Research Ethics Library/Introduction/Methods and approaches/Qualitative methods/

  37. Persons with limited life expectancy

    Burden on the participants Risk versus benefit Capacity to consent Confidentiality and anonymity Pragmatic definition For pragmatic ... patients in Norway who have a limited life expectancy have been informed that the disease is no longer curable, but we have no empirical

    /The Research Ethics Library/Topics/Research on particular groups/Persons with limited life expectancy/

  38. What is the extent of the researcher’s responsibility?

    Oslo area and was based on the narratives of two groups of informants. One group comprised health care personnel who had been in ... experiences of the latter group. It was difficult to find informants among the immigrants. However, the Centre for Migration and

    /The Research Ethics Library/Resources/Case studies/What is the extent of the researcher’s responsibility?/

  39. About NESH

    evaluate include how best to ensure that consent is freely given and whether children can consent by themselves to take part in research ... sources,the researchers’ duty of confidentiality and the duty to inform about planned criminal acts. In addition to giving advice in

    /Our work/About us/The National Committee for Research Ethics in the Social Sciences and the Humanities (NESH)/About NESH/

  40. Medicine and healthcare

    All health data is considered sensitive, except anonymous information, which may be used without prior approval.. Research on embryos ... risk-benefit assessments, satisfactory informed consent and an assessment of the suitability of informants/subjects pursuant to the principle

    /The Research Ethics Library/Introduction/An introduction to research ethics/Medicine and healthcare/

  41. Norwegian research gets its Code of ethics

    implies that individuals who participate in research, as informants or otherwise, should be treated with respect. Researchers ... participants and society as a whole. Consent is the main rule in research on individuals or on information and material that can be linked

    /News/News archive/Norwegian research gets its Code of ethics/

  42. Experiences of violence among children in the care of the Norwegian Child Welfare Service

    contend that the results will provide extremely important information, which can help to improve children's living situation in ... of individual institutions. The children will receive an information letter describing in simple terms what the study will be

    /The Research Ethics Library/Resources/Case studies/Experiences of violence among children in the care of the Norwegian Child Welfare Service/

  43. Biometrics

    be used in a wide range of areas: in the health service, information systems, the transport sector and the workplace, for logging ... challenges in research Digitisation incorporates the body in the information network: individuality and subjectivity become digital objects

    /The Research Ethics Library/Topics/The research/societal relationship/Biometrics/

  44. Vulnerable groups

    the group may have special difficulty giving free and informed consent to being the subjects of research. Introduction Vulnerability ... Declaration of Helsinki (2009) Subjects unable to give informed consent Subjects receptive to coercion or undue influence Populations

    /The Research Ethics Library/Topics/Research on particular groups/Vulnerable groups/

  45. New anthology: Internet research ethics

    discussed in the book are the following: When is voluntary consent from research subjects required in using the Internet as a ... academic publisher (Cappelen Damm Akademisk). Articles: Consent and information – ethical considerations when conducting research on

    /News/News archive/2016/New anthology: Internet research ethics/

  46. Summary

    Summary Research ethics The concept of "research ethics" refers to a broad set of standards, values, ... Researchers must respect the requirement of freely given, informed consent. 11 Researchers must protect the privacy of their research

    /Ethical guidelines for research/Guidelines for research ethics in science and technology/Summary/

  47. About NEM

    About NEM The Committee has 12 members with different professional backgrounds. Traditionally, the committee has been ... 2005: guidelines for research on persons with impaired informed consent capacity 2004: report on the ethical aspects of population

    /Our work/About us/The National Committee for Medical and Health Research Ethics (NEM)/About NEM/

  48. "Extremism is a research ethics minefield"

    age of confusion, fear and frustration. Politicians want information that helps them make the right decisions. The population ... Gule asked himself whether interviews could actually yield information that was so valuable that it made up for the potential burdens

    /News/News archive/2016/"Extremism is a research ethics minefield"/

  49. UNESCO’s Declaration on the Human Genome

    genome against unethical and unfair exploitation of genetic information. History In 1993, UNESCO founded the International Committee ... must people be discriminated against on the basis of genetic information. This principle naturally has implications for minorities

    /The Research Ethics Library/Practical information/Legal statutes and guidelines/UNESCO’s Declaration on the Human Genome/

  50. Introduction

    is to provide researchers and the research community with information about recognised norms of research ethics. The guidelines ... tasks, for example systematic acquisition and processing of information about persons, groups or organisations in order to develop

    /Ethical guidelines for research/Guidelines for Research Ethics in the Social Sciences, Humanities, Law and Theology/Introduction/