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  1. 2. Free and informed consent

    2. Free and informed consent According to the NESH's Guidelines, research projects that include persons must generally only ... only be initiated after securing the subjects' free and informed consent (point 9). In other words, researchers must weigh relevant

    /Ethical guidelines for research/Ethical Guidelines for Internet Research/2. Free and informed consent/

  2. Dunn & Gordon (2005)

    Dunn LB, Gordon NE. “Improving informed consent and enhancing recruitment for research by understanding economic behaviour”. JAMA

    /The Research Ethics Library/Resources/Dunn & Gordon (2005)/

  3. Kho, ME, et al (2009)

    Kho ME; Duffett M, Willision DJ, Brouwers MC. Written informed consent and selection bias in observational studies using medical

    /The Research Ethics Library/Resources/Kho, ME, et al (2009)/

  4. Storosum et al (2002)

    Storosum et al (2002) Storosum, J., van Zwieten, B. & de Haan, L. (2002). Informed consent from behaviourally ... (2002) Storosum, J., van Zwieten, B. & de Haan, L. (2002). Informed consent from behaviourally disturbed patients. The Lancet 359(9300)

    /The Research Ethics Library/Resources/Storosum et al (2002)/

  5. Faden et al (1996)

    Faden et al (1996) Faden, R.R., T.L. Beuchamp & N.M.P. King (1986). A history and theory of informed consent. New York: Oxford University ... Beuchamp & N.M.P. King (1986). A history and theory of informed consent. New York: Oxford University Press

    /The Research Ethics Library/Resources/Faden et al (1996)/

  6. Consent

    Consent Freely given informed consent is regarded as one of the most central requirements for research on humans where the research ... express permission. The requirement that the consent be freely given and informed means that the subjects must not be under any

    /The Research Ethics Library/Topics/Data protection and responsibility concerning the individual/Consent/

  7. Declaration of Helsinki

    self-determination, privacy, and confidentiality of personal information of research subjects. The responsibility for the protection ... never with the research subjects, even though they have given consent. 10. Physicians must consider the ethical, legal and regulatory

    /Ethical guidelines for research/Medical and health research/Declaration of Helsinki/

  8. 3. Children's right to protection

    Children's right to protection Children and youths are valuable informants, and are entitled to be heard, also in the context of research ... does nothing to diminish the requirement to obtain parental consent for children's participation in research, even though this

    /Ethical guidelines for research/Ethical Guidelines for Internet Research/3. Children's right to protection/

  9. Protection of research subjects

    Researchers must respect the requirement of freely given, informed consent When research involves humans as research subjects, researchers ... rule, obtain freely given, informed consent. General requirements regarding freely given, informed consent entail researchers ensuring

    /Ethical guidelines for research/Guidelines for research ethics in science and technology/Protection of research subjects/

  10. Declaration of Helsinki

    self-determination, privacy, and confidentiality of personal information of research subjects. The responsibility for the protection ... never with the research subjects, even though they have given consent. 10. Physicians must consider the ethical, legal and regulatory

    /The Research Ethics Library/Practical information/Legal statutes and guidelines/Declaration of Helsinki/

  11. 4. Personal data, confidentiality and anonymity

    NESH's Guidelines stipulate that researchers must treat all information about private matters confidentially. The material must usually ... that the information is protected. In such situations, people may be willing to volunteer personal and sensitive information in an

    /Ethical guidelines for research/Ethical Guidelines for Internet Research/4. Personal data, confidentiality and anonymity/

  12. Deception research

    Deception in research entails that participants are not fully informed of the purpose of the study. Valuable insight can also be obtained ... participation in studies where those taking part are not informed of what the researchers are actually studying may have serious

    /The Research Ethics Library/Introduction/Methods and approaches/Deception research/

  13. Guidelines drawn up by The Norwegian National Research Ethics Committee for medical and health research (NEM)

    Guidelines drawn up by The Norwegian National Research Ethics Committee for medical and health research (NEM) The ... Norwegian Guidelines for research on persons with impaired informed consent capacity (2005) - - In Norwegian Guidelines for ethical

    /Ethical guidelines for research/Medical and health research/Guidelines drawn up by The Norwegian National Research Ethics Committee for medical and health research (NEM)/

  14. Intellectual impairment

    Introductory figures Voluntary informed consent The voluntary aspect Informedness Consent Anonymization Method-specific ethical ... considerably lower than the actual prevalence. Voluntary informed consent One of the conditions for including someone in a research

    /The Research Ethics Library/Topics/Research on particular groups/Intellectual impairment/

  15. Protection of privacy

    Protection of privacy Information about persons who take part in research projects shall have an "adequate level of protection" ... of the data Fundamental principles Personal data and consent Information security The nature of the data The need for protection

    /The Research Ethics Library/Topics/Data protection and responsibility concerning the individual/Protection of privacy/

  16. B) Respect for individuals

    by the research. 7 Duty to inform Researchers must provide participants with adequate information about the field of research ... who has funded the project, who will receive access to the information, the intended use of the results, and the consequences of

    /Ethical guidelines for research/Guidelines for Research Ethics in the Social Sciences, Humanities, Law and Theology/B) Respect for individuals/

  17. Research Ethics Checklist

    biological tests). 2. Research involving human subjects Is informed consent obtained from the subjects in a reasonable manner? Is it ... relations influence the subject’s consent? 3. Personal information Is all personal information sufficiently anonymised in order

    /Ethical guidelines for research/Research Ethics Checklist/

  18. General guidelines for research ethics

    PRINCIPLES Respect. People who participate in research, as informants or otherwise, shall be treated with respect. Good consequences ... material. 4. Voluntary informed consent Consent is the main rule in research on individuals or on information and material that can

    /Ethical guidelines for research/General guidelines for research ethics/

  19. Questionnaire surveys

    individual anonymity Group-related indiscretion Informed consent Burden on informants – alternative data sources Requirement for relevance ... questions should be formulated to provide the most valid information possible about the facts at issue, and how the responses

    /The Research Ethics Library/Introduction/Methods and approaches/Questionnaire surveys/

  20. The Social Sciences, the Humanities, Law and Theology

    extends also to individuals about whom the researcher gains information, or who are affected by the research in other indirect ways ... into objections particularly on the grounds of a lack of informed consent on the part of the parents, uncertainty about the purpose

    /The Research Ethics Library/Introduction/An introduction to research ethics/The Social Sciences, the Humanities, Law and Theology/

  21. Responsibility concerning the individual

    researcher and the research subject How voluntary and how informed? Anonymisation as protection or invalidation? The researcher's ... expressed in how voluntary informed consent is administered. This concerns such issues as who gives consent, how it is given, whether

    /The Research Ethics Library/Topics/Data protection and responsibility concerning the individual/Responsibility concerning the individual/

  22. Prisoners

    research lies in the possibilities for obtaining freely given informed consent to participate from people whose freedom is restricted ... subject to more stringent requirements in order to ensure that consent is voluntary since there may be uncertainty about whether the

    /The Research Ethics Library/Topics/Research on particular groups/Prisoners/

  23. The Nagoya Protocol

    access to such resources. This means, among others, that informed consent or approval and involvement must be procured from the indigenous ... communities within the territory of a party is accessed with the informed consent or approval and involvement of these indigenous and local

    /The Research Ethics Library/Practical information/Legal statutes and guidelines/The Nagoya Protocol/

  24. Feeding back the findings

    significant and altruistic contributions. The projects will obtain information that may be of interest and importance to these participants ... made clear to them, before they gave their prior consent, that they will be informed of the findings. The examples below are taken

    /The Research Ethics Library/Topics/The research/societal relationship/Feeding back the findings/

  25. Internet users and Internet research

    may concern activities such as the publishing or sharing of information, social interactions or conflicts, genre or product development ... harming anyone and observe the requirements of freely given informed consent and of confidentiality where relevant. At the same time

    /The Research Ethics Library/Topics/Research on particular groups/Internet users and Internet research/